失去生命维持系统的婴儿要过她的第一个生日了
In April, Monique Goldring decided to take her 8-month-old daughter off life support and prepared to say goodbye to her first child.
今年4月，莫尼卡·戈德林(Monique Goldring)决定让她8个月大的女儿停止使用生命维持系统，准备和她的第一个孩子说再见。
But the Maryland mother's "miracle baby" survived, and her family is set to celebrate her first birthday August 25.
但这位马里兰州母亲的“奇迹宝宝”活了下来，她的家人将于8月25日为她庆祝一岁生日。
"I still have my baby with me," she said. "I didn't think I would be able to see that milestone."
“我的孩子还在，”她说。“我认为我不能看到那个希望。
Phoenix was born with a heart defect called double outlet right ventricle, which means her heart can't properly circulate oxygen around her body. To save her life, doctor four surgeries and put a shunt in her heart when she was 2 months old.
菲尼克斯出生时就有一种叫做循环。为了挽救她的生命，医生为她做了四次手术，并在她两个月大的时候在她的心脏里植入了一个分流器。
After being taken off life support, Phoenix breathes with the help of a nasal cannula that provides supplemental oxygen.
在停止生命维持系统后，菲尼克斯依靠鼻插管呼吸，鼻插管提供补充氧气。
At 7 months old, Phoenix started bleeding profusely from her nose. During the drive to the emergency room she turned blue and stopped breathing.
7个月大的时候，菲尼克斯的鼻子开始大量出血。在去急诊室的路上，她脸色发青，停止了呼吸。
"I knew that she was gone," Goldring remembered.
“我知道她走了，”戈德林回忆道。
The sudden cardiac arrest left her daughter with significant brain damage, so she stayed in the hospital on life support for nearly a month. Goldring asked doctors to remove the ventilator that helped Phoenix breathe after seeing how "tired" she was, she said.
心脏骤停使她的女儿遭受了严重的脑损伤，因此她在医院接受了近一个月的生命维持治疗。戈德林说，在看到菲尼克斯“很累”之后，她要求医生摘掉帮助她呼吸的呼吸机。
She watched and waited for six hours after Phoenix was taken off life support, the time doctors said they expected it would take for her to die. But six hours came and went, and the infant was still fighting, she said.
她观察并等待了6个小时，菲利克斯被取消了生命维持系统，医生说他们预计这段时间她将会死亡。但是六个小时过去了，婴儿还在挣扎，她说。
"From that point on, she just continued to thrive," her mother said.
“从那时起，她就一直在茁壮成长，”她母亲说。
Still in danger
仍在危险之中
Phoenix continues to face medical challenges: She was released from the hospital in May on hospice status because doctors said she'd likely die if they performed the remaining surgeries to reroute blood flow.
菲利克斯仍然面临着医疗方面的挑战:她于今年5月出院，目前处于临终关怀状态，因为医生说，如果他们进行接下来的手术来改变血液流动，她很可能会死亡。
"That's kind of hard for a mother (to hear)," she said. "The longer she's here with me, the more difficult it gets for me."
她说:“这对母亲来说有点难以接受。”“她和我在一起的时间越长，对我来说就越困难。”
Despite Phoenix's odds, Goldring said she's focusing on the tiny milestones she never thought she'd see, such as watching her daughter's first teeth come in.
戈德林说，尽管菲利克斯的胜算不大，但她正专注于那些她从未想过会看到的小事情，比如看着女儿长出第一颗牙。
